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Intro to Patient-Orientated Research

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Question 3 (Simon R. & Liel C.)

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1 Question 3 (Simon R. & Liel C.) on Fri Jun 23, 2017 3:00 pm


One benefit of PPI is the cultural perspective users could give to researchers. Describe the example used in the paper in which users offered valuable cultural knowledge to researchers.

In general, what positive outcomes could result from users sharing cultural perspectives with researchers?

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2 Re on Thu Aug 31, 2017 8:42 am


A great example of cultural perspectives being incorporated into the research process is listed on page 641 when the researchers mention how user-involvement helped assess "the approrpiateness of research instruments from a community perspective." This helped to broaden the questions on the questionnaire and interviews, even to the extent of re-wording individual questions. They mention a great example of this being implemented in a study on diabetes; having the patients re-frame questions allowed "researchers to gain invaluable cultural perspectives of diabetes" as it related to social stigma.

The above example on diabetes stands as a great example of how differing perspectives can draw attention to different ideas(beyond the scope of medical researchers). In sum, it creates a greater degree of understanding between the researchers and patients.

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